research advocate

A person who serves as a link between patients and scientific researchers. Research advocates help patients understand scientific information and research findings that may help them. They may also bring a patient perspective on research activities to scientific advisory boards and committees. For example, research advocates use their own experiences and the experiences of patients to work with researchers to help develop clinical trials that are safe and meet the needs of patients. They also help teach patients and their families about clinical trials and recruit patients to clinical trials.